March marks Kidney Disease Awareness Month, a time dedicated to raising awareness about one of the most widespread yet often undiagnosed health conditions. With 1 in 7 American adults affected by kidney disease, the American Kidney Fund (AKF) is leading efforts to educate, support, and empower patients, caregivers, and healthcare professionals.
Kidney Action Week: Uniting the Kidney Community
A key highlight of the month is Kidney Action Week, held from March 3-7. This national virtual conference brings together individuals living with kidney disease, nephrologists, renal dietitians, caregivers, and healthcare experts. Attendees participate in interactive discussions covering vital topics such as rare kidney diseases, prevention strategies, dialysis, transplants, organ donation, and advancements in clinical research.
A special feature of Kidney Action Week is the Congressional Briefing, which will provide an overview of genetic causes of kidney disease and the importance of genetic testing. Notably, U.S. Representative Adrian Smith (R-Neb.), lead sponsor of the Access to Genetic Counselor Services Act, will share insights through a video address.
The Silent Epidemic: Understanding Kidney Disease
Kidney disease is often referred to as a silent killer because up to 90% of those affected remain unaware of their condition until its later stages. Since kidney damage is irreversible, early detection plays a crucial role in slowing disease progression and preventing complications such as heart disease and kidney failure.
Currently, more than 815,000 Americans live with kidney failure, the majority of whom rely on dialysis multiple times a week to survive. Alarmingly, 80% of dialysis patients are unable to work due to the toll of the disease, emphasizing the need for increased awareness, early screening, and policy advocacy.
Women and Kidney Disease: A Hidden Risk
Studies reveal that women—particularly those without diabetes—face a heightened risk of undiagnosed chronic kidney disease (CKD). Data indicates that 20% of women with lab evidence of stage 3 or higher CKD lack a formal diagnosis. Even among diagnosed cases, 40% are misclassified at a lower stage than lab results suggest, delaying crucial treatments.
Recognizing the Warning Signs
Being aware of potential symptoms can lead to earlier diagnosis and intervention. Warning signs of kidney disease include:
- Changes in urine frequency or volume, especially at night
- Blood in the urine
- Frothy or foamy urine
- Swelling in the legs and ankles
- Persistent back pain
- Pain or burning during urination
- High blood pressure
Taking Charge of Kidney Health
Early detection is key to managing kidney disease. Simple blood and urine tests can measure creatinine levels and detect protein in the urine, both of which are critical indicators of kidney function. Regular screenings, particularly for those at higher risk, can prevent disease progression and improve long-term health outcomes.
How to Get Involved
Throughout Kidney Month, AKF encourages individuals to take action in the following ways:
- Register for Kidney Action Week to gain expert insights on kidney health.
- Visit Know Your Kidneys for interactive resources on kidney disease management.
- Become an AKF Ambassador or Kidney Health Coach to educate your community.
- Advocate for policy change by contacting members of Congress.
- Support the cause by making a donation in honor of a loved one.
Kidney Month is a powerful reminder that awareness and education can save lives. By understanding risk factors, recognizing symptoms, and taking preventive measures, individuals can protect their kidney health and contribute to the fight against kidney disease.